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Updates from the Founder

Name: Brandy

Age: 35

Type of Diabetes: Type 1

Date of Diagnosis: January 21, 1990

Diabetes Treatment: Insulin Pump

Number of Children: 1

Occupation: Founder/Executive Director of DiabetesSisters

State: North Carolina

Country: USA

Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it



Lots of "Firsts" (Brandy) PDF Print E-mail

August 30, 2010

This week was a pretty eventful one!  On Wednesday, I had the privilege of speaking with Chris, Theresa, and Charlie on The Diabetes Power Show podcast.  Charlie has Type 2 diabetes, Theresa has Type 1 diabetes, and Chris has Type 3 diabetes (meaning he loves someone with diabetes).  We had such a great time talking about all things diabetes.  You can listen to the interview here and let me know what you think!  We discussed everything from my diagnosis to my dad’s response to my diagnosis to diabulimia to cardiovascular disease and everything in between.  Mostly, everything came back to the main theme: life as a woman with diabetes!

I also did an interview with Diabetes Forecast magazine.  I’ll keep you posted on the print date!  In addition, if you are not familiar with the annual “Celebration of Strength” Luncheon for women with Type 1 diabetes that is put on by the Behavioral Diabetes Institute in San Diego, CA, I want to encourage you to attend.   This year it is being held on Saturday, October 2nd.     I am very honored to be selected as a speaker at this year’s luncheon.  This will be my first time attending, but I have heard so many positive things about it!  I can't wait!  Please let me know if you are planning to attend or if you live in the San Diego area and maybe we could meet up while I’m out there!     

 

Precious Memories: Summer's First Day of Kindergarten

Finally, my daughter started kindergarten today (Monday)!  It’s hard to believe that the little one who was just a little seed in me six years ago is sitting in a kindergarten class as I type this blog!  What is most memorable is her comment to me and my husband, Chris, as we walked her into school this morning.  She turned to us and said, “Today is going to be the best day of my life!”  So innocent and so sweet!  What can you say, except, “Yes, I’ll bet it will be and I can’t wait to hear about it!”  What a blessing that women with diabetes have the opportunity to make memories with their children…whereas two or three decades ago pregnancy was not recommended for women with diabetes!      

 

 
The Art of Infusion Site Placement (Brandy) PDF Print E-mail

August 24, 2010

This past weekend was my daughter’s “last hoorah” at the beach before her first day of kindergarten next week.  Naturally, we spent a lot of our time by the pool.  As I was preparing to put on my swimsuit on Saturday morning, a quick jolt of anxiety shot through me.  I thought the same thought that many women with diabetes who are on an insulin pump think, “Did I put my infusion site in a place that will be covered by my swimsuit?”  Ahhh!  Relief….I pulled up my bikini bottoms and saw that the infusion site was covered.  (Tip: I bought a cute swimsuit cover-up from Target that has small pockets on the front bottom.  It works nicely to put my insulin pump in the pocket while walking to the pool or walking on the beach. Aside from the clear tubing that trails up to the pocket, you really don’t notice it.)  Infusion site placement is just a part of life as a woman with diabetes that someone without diabetes wouldn’t understand. Yet, I’m sure many readers can identify.  I got my first insulin pump back in 1996—when there were no insertion devices.  I am often asked what kind of insertion device I use and when I respond that I don’t use one, there is an immediate gasp, followed by, “What?  You don’t use one?  How do you do it without an insertion device?”  I feel really old when I explain that when I went on a pump (way back in 1996!) there were no insertion devices, at least none that I knew of.  To my younger counterparts, not using an insertion device sounds barbaric! 

All of this talk about infusion site and insertion devices is very timely for the upcoming National Infusion Site Awareness Week (Aug 30– Sept 5).  You can read more about it here:  www.infusionsitemanagement.com.  (Note: If you have type 1 diabetes and aren’t on an insulin pump or type 1.5 or type 2 diabetes, the previous site will provide more detailed information to help you understand what an infusion site it.)  The Week is sponsored by Roche Diagnostics, maker of ACCU-CHEK products.  The purpose of the Week is to increase understanding and education about proper infusion site management – and complications that can result from poor site management such as infection, poor insulin delivery and tissue or skin damage.  Personally, I am glad that there is some awareness being brought to an aspect of diabetes that isn’t often given much thought, yet is VERY important in overall blood sugar management.  Although there are over 26 million people in the US who are living with diabetes, the number of people that use an insulin pump to control their insulin is about 400,000.      

 

 
In the Moment with Diabetes (Brandy) PDF Print E-mail

August 16, 2010

This past weekend I ventured back to my hometown of Hickory, NC to emcee my cousin’s wedding reception.  It was a simple affair, but it still required a lot of work to get everything set up.  We spent the day on Saturday setting up the reception area and running last minute errands for the guests of honor.  I recall my pump beeping on Saturday morning to alert me that I had less than 20 units left, but I blew it off in the midst of the reception chaos.

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Don't Play Games with Me! :-) (Brandy) PDF Print E-mail

August 9, 2010

 Connie Hanham-Cain, a DiabetesSisters Blogger and me at the 2010 AADE Conference
Hello Sisters!  This week, I attended the AADE Conference in San Antonio,Texas.   Compared to the 2009 conference, this year’s attendance seemed to be quite lower.  Despite the lower attendance, I was able to spend quality time with quality people in the diabetes world while in San Antonio. 

  

“Don’t play games with me!”  It’s a phrase that we have all either heard or said before.  However, computer/phone applications and games are the current rage in the diabetes industry.  So, I hope you are prepared to play games!   For those who like to play games on Facebook and iphone, there is a new world of “diabetes games” on the horizon.  The purpose of these games has moved from being meaningless (i.e. Facebook’s Farmville) to driving positive behaviors and engaging communities.   A great example is the partnership between Manny Hernandez of Diabetes Hands Foundation, Boehringer Ingelheim, and Joslin Diabetes Center.  They teamed up to bring HealthSeeker, a Facebook game, to the diabetes community.  Another example is the new Didget meter by Bayer.   It plugs into the Nintendo DS gaming system and rewards kids for consistent blood sugar monitoring.   How the world of diabetes has changed in the last few years! 

Manny Hernandez, Michael Fergusson, Kelly Close, me, Janie Rodriguez (Boehringer-Ingelheim)

On Friday morning, I had the honor and pleasure of attending a session led by none other than our very own DiabetesSisters—Connie, Claire, and Cindi.  Their presentation, Conversations that Matter: Living with Advanced Duration Diabetes, was highly informative!  They discussed the complications that are present (and many diabetes educators are unaware of) in advanced duration diabetes.  At the end of their presentation, they mentioned their work with DiabetesSisters and the survey they compiled to assess the unique needs and experiences of women with advanced duration diabetes.  Here it is: https://www.surveymonkey.com/s/diabetesselfmanagement    I encourage you to take it.  They plan to use the results from this survey to present at next year’s AADE poster session.

Cindi Goldman-Pattin, Claire Blum, me, and Connie Hanham-Cain

DiabetesSisters Bloggers at 2010 AADE Conference

Until next week!

 

 
Pink is for Breast Cancer...(Brandy) PDF Print E-mail

August 2, 2010

Pink is for Breast Cancer; Orange is for Women with Diabetes 

If you live in the US, it’s pretty much a given that you know that pink is the color for breast cancer.  It’s everywhere- on television, billboards, newspapers, and radio.  In fact, it’s even on the products we buy- from cereals to garden tools.  We even see men’s professional teams donning pink uniforms in support of women with breast cancer.  There is absolutely no way you could get through the month of October without knowing that it is breast cancer awareness month.  Why is it that we see breast cancer awareness campaigns everywhere?  Is it because it is the most frequently diagnosed disease among women?  Is it because more women are dying from breast cancer than from any other disease?   Is it because breast cancer treatment places a heavier financial burden on consumers, the health care system, and the government than does breast cancer?  It must be because of one of these very important reasons, right?
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Is it just me or... (Brandy) PDF Print E-mail

July 25, 2010

As many of you know, I am an avid supporter of women, especially women with diabetes “taking care of themselves- emotionally and physically.”  One way I take care of my spirit is to be pampered through regular pedicures.  My five-year-old daughter, Summer, has been going with me to the nail salon for the last year.  We seem to draw a lot of attention when we walk into the salon.  I think everyone is curious to see how such a young girl is going to behave.  Amazingly, she has been enough now that she knows the routine—sign in, choose your polish, find a magazine, settle into your chair, read your magazine while your toes are being pampered.  All of the customers always get a kick out of watching her because they are not expecting her to know what to do and to actually do it.  I guess she’s had a good role model! J  On one hand, pedicures at such a young age could be viewed by some as “spoiling” my daughter.  (Let me clarify that she doesn’t get a “full” pedicure.  She gets a “polish change” which costs a total of $5.)  I, on the other hand, feel proud that I am teaching my daughter the importance of nurturing her spirit at such a young age.  I often talk to women who say they have never had a manicure or a massage.  It seems as if they equate taking care of themselves with being selfish.  While one must not get carried away with the pampering, I still say that there is nothing wrong with taking time out for yourself once a week or once every two weeks.  We deserve it!  Not to mention, it rejuvenates our spirit! 

The last time I was at the nail salon I ran into one of my DiabetesSisters that I have known for a long time.  She and I began talking and she revealed that she had just experienced a “bad low blood sugar” in Ann Taylor's Loft.  In fact, she mentioned that her blood sugar had dropped to 29.  Then she said those important bonding words, “I don’t know what it is about shopping, but I have a low blood sugar every time I go shopping.”  Immediately, I said, “Wow!  You too?  It seems like all I have to do is walk in the mall and my blood sugar drops.”  We commiserated over our stories about low blood sugars while shopping and shared our own strategies for avoiding lows while shopping.  She mentioned that she always “carbs up” before going to the mall and I discussed how I make sure I have at least two snacks in my purse before entering the mall. 

All of this discussion got me wondering….Now I know that it’s not just me who experiences consistent low blood sugars while shopping.  But, I wonder if someone-- maybe a CDE, nutritionist, or dietician can shed some light on this occurrence.  I realize that shopping requires a lot of walking, which works off a lot of energy.  But, it really seems like there is something else going on besides that…especially when you consider how many lows I’ve had after being at the mall for only 5 or 10 minutes.  Is it the excitement?  Is it the combination of physical activity and brain activity (hey, we have to do some serious thinking to put together such stylish ensembles!?!?)  Has anyone else experienced this?  Does anyone have any theories or suggestions?I guess that’s just another thing that makes diabetes DIFFERENT for women!  (Trust me--I doubt men are concerned about excessive low blood sugars while shopping! Ha ha!)   

 

 
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